More thoughts on the LC ribbon, see also my note on this for the visual aide.
Let’s start with an overview of it-
The three colors in the ribbon represent:
past present and future of Long Covid
Gray: Loss and Grief
Teal: Hope and Support
Black: Loneliness and Isolation
First of all, this is a spliced ribbon. I don’t have any ribbon in my house that has spliced color like this does.
Second-
Teal is not a primary color. It’s a blend of calming blue skies or the chaotic seas that can change from serene to chaotic in an instant. Green is vibrant, full of renewal and life.
The color yellow has traditionally been associated with Hope- joy, energy, light, life, vitality.
Grey/Black is associated with the absence of light, darkness, rest, sleep, sickness and death.
The movement of the LC color ribbon goes upward from grey to black at the top of the ribbon and then downward to teal, hope. But hope, looks up toward a higher thing in quality. You do not look down to something of lesser quality or move down to the ground for hope. Hope has a higher quality. The reach for something of better quality is up not down. The directional movement of this spliced ribbon is all wrong. The movement of aim for a grain of sand of lower quality on the earth is upward to that of a star high up in the sky.
The LC color ribbon is twisted in its symbolic meaning- it elevates grief and loss; it puts isolation and loneliness as it’s highest aim; it pushes Hope behind the darkness and moves it down into the ground, the place associated with death, not life.
Traditional People who better understood the Pinocchio, when you wish upon a star moral of the story, should be able to understand what’s really going on here.
Thanks Stephanie! Your words reflect many of my own frustrations about Long COVID politicalization and the apparent dead ends orientation of research that is coming out of the massively funded RECOVER project.
On a personal note, I wonder how many other people lost their hair, at least in part, during COVID? I did. It was about the same time that I lost my sense of smell. It took a couple of months to recover my senses of smell and taste, but my hair's revitalization is still in progress, now nearly 4 years along.
Thank you for your comment Mardi, it’s nice to know I’m not the only one who sees through the RECOVER facade. I had the opportunity to ask someone who was promoting this and LC awareness day to help me understand her view. Unfortunately, it boiled down to nothing more than research dollars. However, I’ve done enough of my own research to know that there is already enough information available to help people better manage their condition. I was also accused of being selfish for not being in agreement on this issue. I’ve spent a lifetime in the helping professions. Selfish isn’t the right word to be use against me.
According to my hair person, a lot of women lost theirs due to covid. I did have a lot of it, so my hair loss may not be as noticeable as others, but it’s not the same as it was before even though I have brought it back into a good healthy condition.
I lost my taste and smell, but used topical vitamin A, zinc lozenges, and CBD gummies which brought them both back within a few weeks after using them. The CBD gummies also relieved the terrible burning mouth syndrome I experienced.
It’s all been frustrating and started with ignoring what was already known about forcing shut downs and vaccines and quarantines. All forceful tactics were already documented as being ineffective, but were done anyway and have resulted in disastrous consequences. I’ve not heard of much good coming out of the RECOVER study, but I have heard it has been the cause of additional stress and frustration that is not good for the person who has LC. Their entry criteria was ridiculous, especially the positive covid test requirement in light of testing misuse and boondoggles. The requirements clearly excluded people from the study who should have been included. As someone who has been living with another post viral condition for close to 20 years now, I’m glad to be somewhat ahead of this post viral learning curve, but watching people go through some of what I’ve already been through and seeing their expectations of our health system become more realistic and knowing what it isn’t doing for them has been hard for me to watch. The last thing I want at this point is more governmental involvement in my health especially if they were in any way responsible for this plague in the first place.
More thoughts on the LC ribbon, see also my note on this for the visual aide.
Let’s start with an overview of it-
The three colors in the ribbon represent:
past present and future of Long Covid
Gray: Loss and Grief
Teal: Hope and Support
Black: Loneliness and Isolation
First of all, this is a spliced ribbon. I don’t have any ribbon in my house that has spliced color like this does.
Second-
Teal is not a primary color. It’s a blend of calming blue skies or the chaotic seas that can change from serene to chaotic in an instant. Green is vibrant, full of renewal and life.
The color yellow has traditionally been associated with Hope- joy, energy, light, life, vitality.
Grey/Black is associated with the absence of light, darkness, rest, sleep, sickness and death.
The movement of the LC color ribbon goes upward from grey to black at the top of the ribbon and then downward to teal, hope. But hope, looks up toward a higher thing in quality. You do not look down to something of lesser quality or move down to the ground for hope. Hope has a higher quality. The reach for something of better quality is up not down. The directional movement of this spliced ribbon is all wrong. The movement of aim for a grain of sand of lower quality on the earth is upward to that of a star high up in the sky.
The LC color ribbon is twisted in its symbolic meaning- it elevates grief and loss; it puts isolation and loneliness as it’s highest aim; it pushes Hope behind the darkness and moves it down into the ground, the place associated with death, not life.
Traditional People who better understood the Pinocchio, when you wish upon a star moral of the story, should be able to understand what’s really going on here.
Thanks Stephanie! Your words reflect many of my own frustrations about Long COVID politicalization and the apparent dead ends orientation of research that is coming out of the massively funded RECOVER project.
On a personal note, I wonder how many other people lost their hair, at least in part, during COVID? I did. It was about the same time that I lost my sense of smell. It took a couple of months to recover my senses of smell and taste, but my hair's revitalization is still in progress, now nearly 4 years along.
Thank you for your comment Mardi, it’s nice to know I’m not the only one who sees through the RECOVER facade. I had the opportunity to ask someone who was promoting this and LC awareness day to help me understand her view. Unfortunately, it boiled down to nothing more than research dollars. However, I’ve done enough of my own research to know that there is already enough information available to help people better manage their condition. I was also accused of being selfish for not being in agreement on this issue. I’ve spent a lifetime in the helping professions. Selfish isn’t the right word to be use against me.
According to my hair person, a lot of women lost theirs due to covid. I did have a lot of it, so my hair loss may not be as noticeable as others, but it’s not the same as it was before even though I have brought it back into a good healthy condition.
I lost my taste and smell, but used topical vitamin A, zinc lozenges, and CBD gummies which brought them both back within a few weeks after using them. The CBD gummies also relieved the terrible burning mouth syndrome I experienced.
It’s all been frustrating and started with ignoring what was already known about forcing shut downs and vaccines and quarantines. All forceful tactics were already documented as being ineffective, but were done anyway and have resulted in disastrous consequences. I’ve not heard of much good coming out of the RECOVER study, but I have heard it has been the cause of additional stress and frustration that is not good for the person who has LC. Their entry criteria was ridiculous, especially the positive covid test requirement in light of testing misuse and boondoggles. The requirements clearly excluded people from the study who should have been included. As someone who has been living with another post viral condition for close to 20 years now, I’m glad to be somewhat ahead of this post viral learning curve, but watching people go through some of what I’ve already been through and seeing their expectations of our health system become more realistic and knowing what it isn’t doing for them has been hard for me to watch. The last thing I want at this point is more governmental involvement in my health especially if they were in any way responsible for this plague in the first place.